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Post by Ms B. on Oct 7, 2009 11:43:20 GMT 10
Again another one the doesn't include an online article, just the PDF "Chronic fatigue syndrome and mitochondrial dysfunction," PDF |
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Ben
Extrovert
27/m/CFS for 7 years.
Posts: 394
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Post by Ben on Oct 7, 2009 12:56:40 GMT 10
That is what my ATP protocol is aimed at fixing. And it works! OMG does it work! i think you should try it. Start of last week i got sick of chugging pills all day so i stopped taking them for a couple days. I went downhill quick, then when i went back on them it was like shooting up heroin. Its quite costly but way worth it. Let me know if you want to and i'll give you the doses but its basically a combination of D-Ribose, L-Carnitine, and CoEnzyme Q10.
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susana
My Second Home
If I can build a bridge to somewhere, its better than a fast train to nowhere.
Posts: 511
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Post by susana on Oct 7, 2009 16:11:55 GMT 10
Hey, guys. I stumbled across an old issue of an autoimmune disease newsletter that I hadn't opened/read, from way back June 2008. There was some really interesting info in it. One article was about the adult stem cell treatment they're trying. I gathered from the article that it might be as simple as they could harvest adult stem cells for me from my own blood, then give them back to me. Apparently they've had some good success with it in selected patients with certain illnesses they've tried it for, including Multiple Sclerosis. They say in some patients it has brought about remission. Am thinking of asking my doctor if we should try it. Then there is a really gross, kinda funny (unintentially) article about "worm therapy" where apparently they are making consenting patients drink a cocktail containing over 2500 whipworm eggs.    Says the eggs hatch into larvae the size of an eyelash & attach themselves to the intestinal walls. (  ) The process by which the body kills the larvae is said to produce lots of good T-cells & have beneficial results, especially with the gastrointestinal aspects. I'll try to find a link for it, but won't be tonight. Got to save some spoons for tomorrow. |
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Post by Ms B. on Oct 8, 2009 15:12:29 GMT 10
That is what my ATP protocol is aimed at fixing. And it works! OMG does it work! i think you should try it. I can't tell if you're being serious or taking the p*** Ben  I'm suspicious because you're a funny one  I also haven't read the PDF yet. Haven't got the spoons for it at the moment so I'm a bit lost. When aren't I though? I'll try to find a link for it, but won't be tonight. Got to save some spoons for tomorrow. They both sound like really interesting article Susana, I'd love to read them. Even the gross one although I don't know if I'd be able to make it through that one. Might be too gross. If you find the link will you post it in a new thread? |
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Ben
Extrovert
27/m/CFS for 7 years.
Posts: 394
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Post by Ben on Oct 9, 2009 8:50:25 GMT 10
Haha no im not taking the p***, p*** doesnt agree with me remember? yer nah the protocol really is that good. I only read a little bit of the thing, look for the words ATP, they're everywhere. I never knew what that stood for before but apparently its something to do with mitochondrial function. And hence the antidote - ATP protocol.
I'd try it if i was you's. It would cost you a fortune to get this info from my doc, so really, the advise is worth thousands $$$ lol. It stops your mitochondria from being damaged (which is essential for the cells energy production). If you get tired from doing stuff, chanced are its oxidation on the cells, the protocol will help stop it. My expirience is it really helped my endurence for the day, it stops me getting tired so quick and so out for the count as early. Didn't cure my CFS of course but i beleive im substancially better off on it.
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Post by Ms B. on Oct 9, 2009 9:30:44 GMT 10
Interesting... But is it a constant thing you have to take or is it a course for a certain amount of time?
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Ben
Extrovert
27/m/CFS for 7 years.
Posts: 394
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Post by Ben on Oct 9, 2009 11:31:28 GMT 10
Yer i think it is constant, and it is quite expensive. Our CFS bodies over produce some chemical, because it fears its always under-attack. The chemical it produces damages the mitochondria, and the protocol is designed to reverse it.
In a way CFS is like Cushings Syndrome (over-production of cortisol, which is damaging in large doses - auto immune). ME is generally beleived to be an auto-immune disorder, and over produces a number of contributing body chemicals that reasearchers are only now finding. Even some of the tests i do now are for experimental puposes only. The b12 injections were aimed at stopping some chemical, didnt work for me, b ut the ATP protocol seems to be right on the money.
Definetly no quick fixes to CFS, its a life long illness. I think in the future and even now it can be pushed into a very minute level. Even like HIV, as long aws the white count is up ya pretty much ok. Managing CFS will be like that, but we'll call it our "blue" count lol, or butterfly count, it shall be measured in butterflies!
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Post by Ms B. on Oct 10, 2009 14:41:37 GMT 10
Ah I see. I'm a bit iffy about taking anything continuously after having to take meds constantly almost all my life, so it's not something I'd do lightly. Probably not even something I'd do unless it was to keep me alive. I don't care how much of a quality of life it gives me, I can't deal with long term medications. Jeez ME is great isn't it? I just love it  I think it shows all the signs of being auto immune. |
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